Friday, September 27, 2013

Check me out over at the Great Bowel Movement

Hello crohnies! I was recently featured on the amazing website The Great Bowel Movement. Headed by the wonderful Andrea Meyer and Megan Starshak, GBM provides a great space for community, advocacy, and agency.

Check out my post!

In other news, I had a renal ultrasound today to address longstanding kidney stone issues . . . probably independent from Crohn's, since my stones are not the typical calcium oxalate stones seen in Crohn's disease patients. Mine are uric acid stones. Take a gander at what the CCFA has to share about extraintestinal renal complications associated with IBD.


The journey continues . . .

This is not from my renal ultrasound, but, rather, from my abdominal X-ray the day prior. If anyone is hiring models for hospital gowns, let a homegurl know.

5 comments:

  1. Tony, What a happy, optimistic, upbeat guy you are! Thank you for your bright, happy smile and attitude. My husband has UC and we just celebrated (?!) his first year with the ostomy. His rectum is not ready to attempt a J-pouch surgery yet, but we are hopeful. He and you are much alike in your positive attitude and optimism. You may enjoy his blog/book at trulyamazinglife.com. Good luck with your stones. Oh, and I think you make a great hospital gown model. ;)

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  3. Thank you so much for creating this blog Tony. You are an inspiration. As a young gay male with similar health conditions I just want to say how great your blog is to read.

    I'm almost 20 and live in Ireland. I was very ill throughout my teens and after years of struggling, my doctors recently diagnosed me with Crohns Disease, Tachycarida, Large Hiatal Hernia, Fibromyalgia, corneal shrinkage and Depression.

    Like you I take about 12 tablets a day. A mix of pain meds and vitamin boosts. I'm on immunosuppressant injections (humira).


    I must say you are so strong moving on and pushing through life. And with a great sense of humour too! I hope all is working out for you.

    I'm hoping to start college, at last this year. May I add your a great author and also ... You don't look half bad mate in a hospital gown!

    I'd love to hear more from you. If leave my email but I don't know if you'd get it and others might spam me.

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